Sunday, June 14, 2009

Asperger's Syndrome Blog?

Whether you know us in real life or maybe just in blog form, you probably are aware that our oldest son, Benjamin, was diagnosed with Asperger's Syndrome a little over a year ago. We had thought for quite some time, before his actual diagnosis, that this was a possibility and have pretty much consumed ourselves with research, therapy and doctor's appointments in the last year and a half. 
Within the past few months, we have had people come to us who speculate the same situation with their own child. I know a few of my blog readers have landed here because they, too, have a special needs child. And I have received emails from a few of you who were sent here from friends of ours. We are humbled and thankful for your openness. While we, by no means, feel qualified to give advice, (every situation is indeed different), we're more than happy to share what has worked for us and what hasn't. From insurance issues, to state grants, school district help, the huge bills that come from therapists that can consume and overwhelm you...we're happy to share any experience with you. I have also worked closely with Benjamin's KISD therapist to create sight-based schedule charts, behavior charts and learning tools that I will be happy to share with you (templates and all).
I know there are hundreds of sites out there with an overwhelming amount of information. We are a part of a few group sites and discussion boards, as well. After chatting with so many of you about this, I am toying with the idea of including an Asperger's section here on our family blog, or starting a group blog for Asperger's that is more of a "friendly" blog (as in you can feel as though you are sharing amongst friends, instead of a large group). If you are interested in this, or know someone who might be, please email me privately at mrsdaviddominguez[at]gmail[dot]com. 
If you are just starting out on this road, it can be quite over-whelming and a little scary. Even in the middle of it all, it is still over-whelming and scary! Sharing experiences is a great tool to help us learn through the process.
We'd love to hear from you.

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